Abstract
References
- Bethell, J., Aelick, K., Babineau, J., Bretzlaff, M., Edwards, C., Gibson, J., Hewitt Bolborne, D., Iaboni, A., Lender, D., Schon, D., McGilton, K. (2020). Social connection in long-term care homes: A scoping review of published research on the mental health impacts and potential strategies during COVID-19. JAMDA, 22, 228e237 https://doi.org/10.1016/j.jamda.2020.11.025
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. www.doi.org.10.1191/1478088706qp063oa
- Canadian Institute for Health Information [CIHI]. (2020). Pandemic experience in the long-term care sector: How does it compare with other countries? www.cihi.ca/sites/default/files/document/covid-19-rapid-response-long-term-care-snapshot-en.pdf
- Chamberlain, S.A., M. Hoben, J.E. Squires, and C.A. Estabrooks. 2016. Individual and Organizational Predictors of Health Care Aide job satisfaction in long term care. BMC Health Services Research, 16(1):577. https://doi.org/10.1186/s12913-016-1815-6
- Chu, C.H., Yee, A.V., & Stamatopoulos, V. (2022). “It’s the worst thing I’ve ever been put through in my life”: The trauma experienced by essential family caregivers of loved ones in long-term care during the COVID-19 pandemic in Canada. International Journal of Qualitative Studies on Health and Well-being, 17(1), 2075532, DOI: 10.1080/17482631.2022.2075532
- Daley, S., Akarsu, N., Armsby E., Farina, N., Feeney, Y., Fine, B., Hughes, L., Pooley, J., Tabet, N., Towson, G., Banerjee, S. (2022). What factors have influenced quality of life in people with dementia and their family carers during the COVID-19 pandemic: a qualitative study. BMJ Open 2022;12:e053563. doi:10.1136/bmjopen-2021-053563
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- Kallio, H., Pietila, A.-M., Johnson, M., & Kangasniemi, M. (2016). Systematic methodological review: developing a framework for a qualitative semi-structured interview guide. Journal of Advanced Nursing, 72(12), 2954–2965. https://doi-org.ezproxy.tru.ca/10.1111/jan.13031
- Kemp, C. (2020). #MoreThanAVisitor: Families as “essential” care partners during COVID-19. The Gerontologist, XX(XX), 1-7. https://doi.org/10.1093/geront/gnaa161
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- McGrath, C., Palmgren, P., & Liljedahl, M. (2019). Twelve tips for conducting qualitative research interviews. Medical Teacher, 41(9), 1002–1006. https://doi-org.ezproxy.tru.ca/10.1080/0142159X.2018.1497149
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- Romanow, R. (2002). Building on Values: The Future of Health Care in Canada – Final Report. Ottawa: National Library of Canada. At https://publications.gc.ca/collections/Collection/CP32-85-2002E.pdf
- Ryan, F., Coughlan, M., & Cronin, P. (2009). Interviewing in qualitative research: the one-to-one interview. International Journal of Therapy & Rehabilitation, 16(6), 309–314.
- Tupper, S., Ward, H., & Parmar, J. (2020). Family presence in long-term care during the COVID-19 pandemic: Call to action for policy, practice, and research. Canadian Geriatric Journal, 1(23), 335-339. https://doi.org/10.5770/cgj.23.476
- Wolf, D. A., & Jenkins, C. (2008). Family care and assisted living. In S. M. Golant & J. Hyde (Eds.), The assisted living residence: A vision for the future (pp. 198–222). Johns Hopkins University Press.
“You Admit a Resident, You Admit a Family” The Impact of COVID-19 Restrictions on Family Time in Long-Term Care
Abstract
Social connection is associated with wellbeing and better health. However, the public health restrictions that were put in place due to COVID-19 disproportionately affected the older adult population, particularly those living in long-term care (LTC). Due to this unprecedent situation, the researchers aimed to understand the perceived impact of pandemic restrictions on families of residents in LTC facilities, and to shed light on how families perceive the strategies put in place helped families stay connected. Reporting on the interview data of a larger mixed-methods study, findings focused on themes of quality of life, quality of care, mental health concerns, communication, and the rules. The rules was an overarching theme and each of the inter-related themes describe the experiences of families feeling dismissed by the health system, stressed about not being able to support their loved one, and helpless during the various lockdowns when staffing was additional strained. These findings highlight how being excluded from decision-making processes, family members and their loved ones were severely impacted by the COVID-19 restrictions and calls for policy changes to be inclusive of families as part of the care team in decision-making for LTC.
Keywords
COVID-19 Restrictions Policy Long-Term Care Family Caregivers Social Connections Canada British Columbia
References
- Bethell, J., Aelick, K., Babineau, J., Bretzlaff, M., Edwards, C., Gibson, J., Hewitt Bolborne, D., Iaboni, A., Lender, D., Schon, D., McGilton, K. (2020). Social connection in long-term care homes: A scoping review of published research on the mental health impacts and potential strategies during COVID-19. JAMDA, 22, 228e237 https://doi.org/10.1016/j.jamda.2020.11.025
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. www.doi.org.10.1191/1478088706qp063oa
- Canadian Institute for Health Information [CIHI]. (2020). Pandemic experience in the long-term care sector: How does it compare with other countries? www.cihi.ca/sites/default/files/document/covid-19-rapid-response-long-term-care-snapshot-en.pdf
- Chamberlain, S.A., M. Hoben, J.E. Squires, and C.A. Estabrooks. 2016. Individual and Organizational Predictors of Health Care Aide job satisfaction in long term care. BMC Health Services Research, 16(1):577. https://doi.org/10.1186/s12913-016-1815-6
- Chu, C.H., Yee, A.V., & Stamatopoulos, V. (2022). “It’s the worst thing I’ve ever been put through in my life”: The trauma experienced by essential family caregivers of loved ones in long-term care during the COVID-19 pandemic in Canada. International Journal of Qualitative Studies on Health and Well-being, 17(1), 2075532, DOI: 10.1080/17482631.2022.2075532
- Daley, S., Akarsu, N., Armsby E., Farina, N., Feeney, Y., Fine, B., Hughes, L., Pooley, J., Tabet, N., Towson, G., Banerjee, S. (2022). What factors have influenced quality of life in people with dementia and their family carers during the COVID-19 pandemic: a qualitative study. BMJ Open 2022;12:e053563. doi:10.1136/bmjopen-2021-053563
- Dupuis-Blanchard, S., Maillet, D., Theriault, D., LeBlanc, F., & Bigonnesse, C. (2021). "Be Their Advocate": Families' Experience with a Relative in LTC during the COVID-19 Pandemic. Canadian Journal on Aging / La Revue canadienne du vieillissement, 40(4), 628–638. https://doi.org/10.1017/S0714980821000398
- Fisman, D., Bogoch, I., Lapointe-Shaw, L., McCready, J., Tuite, A. (2020). Risk factors associated with mortality among residents with coronavirus disease 2019 (COVID-19) in long-term care facilities in Ontario, Canada. JAMA Network Open, 3(7):e2015957. doi:10.1001/jamanetworkopen.2020.15957
- Gallant, N., Hardy, M-S., Beogo, I., Conklin, J., Connelly, D., Kaasalainen, S., Keefe, J., Roitaille, A., Yous, M-L., Fanaki, C., & Cameron, C. (2022). Improving family presence in long-term care during the COVID-19 pandemic. Healthcare Quarterly, 25 (Special Issue), 40-46.
- Hugelius, K., Harada, N., & Marutani, M. (2021). Consequences of visiting restrictions during the COVID-19 pandemic: An integrative review. International Journal of Nursing Studies, 121, 1-10. https://doi.org/10.1016/j.ijnurstu.2021.104000
- Kallio, H., Pietila, A.-M., Johnson, M., & Kangasniemi, M. (2016). Systematic methodological review: developing a framework for a qualitative semi-structured interview guide. Journal of Advanced Nursing, 72(12), 2954–2965. https://doi-org.ezproxy.tru.ca/10.1111/jan.13031
- Kemp, C. (2020). #MoreThanAVisitor: Families as “essential” care partners during COVID-19. The Gerontologist, XX(XX), 1-7. https://doi.org/10.1093/geront/gnaa161
- Lincoln, Y., & Guba, E. (1986). But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions for Program Evaluation, 30; 73-84. https://doi.org/10.1002/ev.1427
- McGrath, C., Palmgren, P., & Liljedahl, M. (2019). Twelve tips for conducting qualitative research interviews. Medical Teacher, 41(9), 1002–1006. https://doi-org.ezproxy.tru.ca/10.1080/0142159X.2018.1497149
- Mitchell, L., Albers, E., Birkeland, R., Peterson, C., Stabler, H., Horn, B., Cha, J., Drake, A., & Gaugler, J. (2021). Caring for a relative with dementia in long-term care during COVID-19. JAMDA, 23, 428-433. https://doi.org/10.1016/j.jamda.2021.11.026
- Nash, W., Harris, L., Heller, K., Mitchell, B. (2021) “We Are Saving Their Bodies and Destroying Their Souls.”: Family Caregivers’ Experiences of Formal Care Setting Visitation Restrictions during the COVID-19 Pandemic. Journal of Aging & Social Policy. Journal of Aging and Social Policy, 4-5, 398-413. https://doi.org/10.1080/08959420.2021.1962164
- Ontario Ministry of Health and Long-Term Care. (2008). People Caring for People: A Report of the Independent Review of Staffing and Care Standards for Long-Term Care Homes in Ontario. Toronto: Queen’s Printer for Ontario. https://www.health.gov.on.ca/en/common/ministry/publications/reports/staff_care_standards/staff_care_standards.aspx
- Romanow, R. (2002). Building on Values: The Future of Health Care in Canada – Final Report. Ottawa: National Library of Canada. At https://publications.gc.ca/collections/Collection/CP32-85-2002E.pdf
- Ryan, F., Coughlan, M., & Cronin, P. (2009). Interviewing in qualitative research: the one-to-one interview. International Journal of Therapy & Rehabilitation, 16(6), 309–314.
- Tupper, S., Ward, H., & Parmar, J. (2020). Family presence in long-term care during the COVID-19 pandemic: Call to action for policy, practice, and research. Canadian Geriatric Journal, 1(23), 335-339. https://doi.org/10.5770/cgj.23.476
- Wolf, D. A., & Jenkins, C. (2008). Family care and assisted living. In S. M. Golant & J. Hyde (Eds.), The assisted living residence: A vision for the future (pp. 198–222). Johns Hopkins University Press.
Details
| Primary Language | English |
|---|---|
| Subjects | Geriatrics and Gerontology |
| Journal Section | Articles |
| Authors | |
| Publication Date | January 1, 2024 |
| Acceptance Date | December 31, 2023 |
| Published in Issue | Year 2023 Volume: 6 Issue: 3 |
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The National and Applied Gerontology Association (NASAG) is a leading non-profit organization in Türkiye that promotes healthy and productive aging via evidence-based research. The utilization of multidisciplinary and interdisciplinary research in gerontology is crucial in integrating research, practice, and policy, given the need for evidence-based programming to improve the quality of life in old age. As an advocate for social action for older people, the NASAG is particularly concerned that public policies are strongly and genuinely focused on supporting and protecting the most vulnerable, marginalized, or disadvantaged older people.
The NASAG has been a member of the International Association of Gerontology and Geriatrics (IAGG) since 2007.